Two Weeks Post Surgery

I apologize for the delay in getting a post on here to let everyone know what the pathology report said. Most of you heard it on Facebook but the surgeon called and said that they got all of the melanoma in my arm and the two lymph nodes were clear. Wahoo ! Tears of joy flowed from Linda and I as Dr. Nicole gave us the news. We were just pulling into our campsite from visiting mom so I was really nervous and wanted to get the car parked, not knowing what emotions I might have when I heard which side of the coin the news came down on. It was all glorious and all our prayers paid off.
I asked the doctor about the numbness I have in my armpit. It’s such a weird sensation (or lack thereof) to rub on deodorant and not feel what you’re doing. She said, “Oh yeah, I forgot to tell you that you might have some areas of permanent numbness”. Wow, that’s a big side effect to disclose. She said that most of the feeling should come back but when nerves get cut, it’s hard to tell what areas will stay numb. The numbness I can tolerate…I mean, cause well I don’t feel anything there. The part that really bugs me is the nerve pain that starts about 2” from my elbow and goes almost the whole way to my armpit. It’s been really hard to explain to Linda what it feels like so she can maybe offer up suggestions for what might make it feel better. Then one night, I thought of the perfect analogy.
When I was around 12 or 13, like most pubescent girls, I was starting to get that downy hair on my legs. While it didn’t bother me, I knew that most of the other girls in my class were shaving their legs so I thought that was something I should do. I asked my mother one day if I could start shaving my legs and she said “no”. Well, it must have been at that early age that I adopted the philosophy of “Don’t ask permission, just beg for forgiveness later” (which I’ve used extensively ever since). My mom had one of those clunky, steel razors that when you twist the handle, the razor compartment doors lifted up to reveal the blade inside. I remember being mesmerized by the action of opening and closing that thing. To a wide-eyed young girl like me, it was like gull wing doors opening on a Delorean sports car and it seemed so cool. Knowing that this was back in the early 70’s, it was not a head pivoting, contour following, aloe gel covered, triple action blade razor like we now have. One blade in a fixed, non-forgiving stainless steel instrument. Those weren’t gull wing doors on a Delorean sports car. They were more like Bilco doors on a damn root cellar. So I found myself in the bathtub and this was the day that I would take that rite of passage of clean shaven legs. With that razor in my hand, I started at my ankle and drew it, in one fell swoop, up to my knee. I wouldn’t have to worry about fuzzy legs for quite some time, because that maiming device in my hand had removed every hair follicle from my ankle to my knee. You know that pain you feel when an area of your skin has been ripped raw and is exposed to the air ? That’s what the nerve pain on the underside of my arm feels like. Linda gets it now and I think, like the numbness in my armpit, it will just take a while for it all to settle down and heal. I don’t remember my mothers reaction at learning I had disobeyed her in regards to my attempt to shave my legs. Without telling her, it was pretty evident by my raw shin. I hope that she gave me some lessons on the fine art of doing it but that was many moons ago and I really don’t recall. But I do remember what the pain felt like and now I have a modern day connection to my past. How special is that ? LOL
In other news, we are spending a lot of time at mom’s house. I took her to the doctor earlier this week, because she still has a lot of pain in her hip to knee area. They x-rayed her and nothing is chipped, broken or cracked. They gave her the usual shot she gets in her hip and she’s feeling better most days. We have to remind her to do things in small batches. If you clean the whole house in one day, chances are you’re going to feel it the next day. She is really frustrated that her body is not keeping up with what her mind wants to do. I know how she feels.
Last night Linda and I went to dinner with a group of friends that I haven’t seen in maybe 15 years. It was so great to see familiar faces (I had trouble remembering names) and catch up on what folks have been doing. They are going to try and start getting together each month so we’re hoping that we can be part of that.
We are training a new AGS team this week, here at Bucktail. Anxious to work with Tim and Cindy and get them off to a great start. Hope everyone has a great week. I know we will….every day is such a blessing when you don’t have a serious health concern hanging over your head. I feel very blessed !

One Week Post Surgery

LiveJournal Tags: Bucktail Camping Resort,melanoma,Mansfield,surgery

I don’t have a whole lot to talk about but figured I would give everyone an update. We arrived in Mansfield, Pa on Tuesday and got a campsite at Bucktail Camping Resort. We stayed here a couple times last summer when Linda spent time with her grandkids. Linda did all the driving to get here…all 1700 miles from Aurora, CO. Although I wanted to help her do the driving, it was probably a good thing that I didn’t. I unhooked the car from the rig, while Linda checked us in, and just carrying the hitch into the garage of the rig made me get really woozie and I had to lay down so I wouldn’t faint. I get tired quickly but don’t nap cause I have a horrible time getting a good night’s sleep. The area directly under the incision, on my arm is that numb, ouchy feeling like you get when you wake up in the middle of the night and realize your foot or hand has fallen asleep. Linda and I were just talking about what might be causing it cause it’s driving me crazy. I was trying to do some stretches to see if the muscles are tight, etc. to alleviate it and then it hit us. We can see on my arm where they had to pull the skin together, where the melanoma spot was, and the skin in that area is really tight and it’s directly under there where the numbness is. Just wrapped too tight, I guess. See I knew there’d be an explanation for it. Just don’t know how to loosen it up. I think the numbness is easing up….just not quick enough for me.



I can’t get over how lush and green it is here in Pennsylvania. We had gotten used to so much drought-stricken areas out west that this is such a stark contrast to all of that brown backdrop. It’s also been raining ever since we arrived so it’s getting super green and super lush. Our site is nicely shaded and has a beautiful, tall shag hickory tree towering up through the tree canopy. It’s just gorgeous and so majestic ! Boomer is having a ball exploring different parts of the campground as we go out for little walks. They are calling for more rain tomorrow but the weekend is supposed to be perfect so tomorrow night the peace and quiet we’ve experienced these last few days will be replaced with the squeals of little kids and their families. The air will be filled with the smell of campfires and camping will be in full force. Since this campground has so many rides and amenities, geared towards children, the daily rates are quite high so it is pretty quiet during the week. There are many seasonal sites here and that is what draws families to come here from Friday night to Sunday afternoon. They can leave their work behind and get away with their families for rest and relaxation.
Tomorrow it will be one week since my surgery. The doctor said that it would be 5-10 work days before the pathology report would come back on whether the melanoma has spread to my lymph nodes. We’re hoping that we will hear sooner, rather than later and that we get the “all clear” message to resume life as we know it. Until then, I’m trying to “hang loose”, rest and get my strength back. I thank everyone for their prayers and good wishes. Keep ‘em coming…..the biggest speed bump is yet to come.

Surgery

After 2 hours in the operating room and 3 hours in recovery, the surgery is all done and we’re on the road. My day started out with a small dose of radioactive juice injected near where I had the melanoma spot. The tech rubbed the area to get the juice moving. Then they slid me inside of this machine and they took a 2 minute long picture which shows the juice moving to the closest lymph node area. It could have gone to either my neck or my armpit. The radioactive juice goes to a sentinel node, which is the node responsible for draining. The two ladies who were working on me were super nice and there wasn’t any pain whatsoever in what they were doing. They put a little screen to the side of me so I could see what they were seeing. Linda was in the room with me the whole time. She was the official photographer of the events of the day. They took a total of 3 pictures and on the last one, one of the ladies reached in and marked with a marker where they thought the sentinel node was.


Here’s my scarlet letter.

We finished up with this stage and then we had to wait till 11:30 for the surgery so we had several hours to kill. A couple friends of ours (Thank you Bobbie and Nancy) had suggested that we ask the parking crew and see if they had any RV hook-ups so we could bring the rig and stay there, if need be. They have 2 hook-ups but the guy said it might be a little tight because they are in a regular parking area. He suggested that we park in Lot 6 because the one side was blocked off to have the striping done. So Friday morning, we drove the rig to Lot 6 and parked in the empty lot. Once the radioactive test was done, we went back to the rig to hang out.
At 11:15 we went back across the street to the hospital and my surgery prep started at 11:30.


Debra (as seen in this picture) was my nurse and she is also the charge nurse, responsible for all of the nurses in the day surgery area. Super nice lady ! And she gets an A++ for her putting in the IV line in the back of my hand. That is one of the things I hate the most about surgery cause it hurts when they put it in. Not when Debra does it. So slick…Debra was explaining to us that Univ. of Colorado hospital is a “magnet” hospital, which means the nurses have a big say in what goes on in the hospital. They are not slaves to the doctors, like in most hospitals. The nurses have meetings with the doctors about the care of patients and there are pretty stringent guidelines that have to be met in order to have this distinction and UOC has gotten it for the last 4 years. We’ve been really impressed with the hospital staff and their style of healthcare.
Here is their mission statement….







My surgery was scheduled for 1:30 but another surgery got put in the schedule so I didn’t go until about 2:45. As Dr. Nicole explained to us, once in the ER she would use a small Geiger counter to locate the radioactive juice. She then inserted a blue dye that would get absorbed by the sentinel node and let her know which one to take out. She actually took 2 nodes out of my armpit and then proceeded to remove any cancer cells that were around the surgical site on my shoulder. Here’s what I wound up with. The cut on my arm is 4.5” long and the one under my arm is about 3” long. All through the process, Linda could track my progress with a color coded system that showed her what stage I was in. My patient number was 142787 so she could watch the monitor in the waiting room to see what was going on.



Here’s the status board patient’s families can track their progress throughout surgery. It’s a really cool system.


My body does not do well with anesthesia. They gave me a anti-nausea patch behind my ear before the surgery and four different meds in my IV with anti-nausea medicine in it but none of them did the trick. They gave me a couple of these dandy barf bags, which I thought made for great hand puppets (they were empty at this point). Finally I was discharged around 8 p.m. and one of the nurses put me in a wheelchair and took me all the way to the rig. What awesome customer service ! We had hoped to get on the road right after surgery but I was in too much pain to tolerate any bumpy roads. we decided to spend the night in the parking lot and we got on the road at 7:30 on Saturday morning. The worst pain is under my arm, since it’s in such a tender spot. I’m surprised how low the incision is….really close to the top of my left breast.
Linda is doing all the driving because just the act of holding the wheel would be very painful to me. I’m in charge of taking naps and doing a whole lot of nothing. Since our bedroom is in the loft, we’ve been pulling out the sleeper sofa so I can get in and out of a regular bed. Much easier than trying to crawl on my hands and knees to get into the loft. Linda drove 500 miles yesterday and we stayed at a truck stop last night. We have 1200 more miles to cover to get back home, in PA. We are in a waiting game again for the pathology report on the lymph nodes they took out. Could be up to 2 weeks before we hear if they got it all or if I will need more treatments. I suspect that if the cancer is found in the lymph nodes, then I will probably have a scan to see if the cancer has gone to any other part of my body. We’re keeping our fingers crossed that they got it all.
Thanks for all the prayers and well wishes that I’ve seen on Facebook and on our blog…it means a lot. I’ll keep you posted as we hear more. Enjoy the rest of your weekend ! I think I hear the couch calling my name so TTYL.

Joel Would Be Happy

  On Saturday, when we arrived at the Flying J, we filled up with gas and propane and then I unhooked the car from the rig. When everything was filled up, I moved the rig around back to a quiet part of the parking lot that was behind the store. This wasn’t part of the usual trucker area, but an area where the “bobtails” (just the truck part of the combination)could park. Like I mentioned in my last post, another motorhome was parked there so I backed in next to them.
That evening we had supper inside at Denny’s. When we were filling up with gas, we had noticed a young man and his dog, hanging out in front of Flying J. He wasn’t panhandling or anything…just looked road weary and hot. His dog looked like my son’s dog; like he might have some Rhodesian Ridgeback in him. The man had a huge pack on his back, but was very clean and well kept. We didn’t give much thought to this duo and thought maybe they were catching their breath and getting ready to hit the road.
When my son called me around 3 a.m. that his dad had passed, we were up for the day. A couple hours later we went into the store to get something to eat and found this young man and his dog, sleeping under a small tarp on the sidewalk, around the corner from the entrance to the store. We could see the dog’s paws sticking out from under the tarp and knew he was curled up next to his buddy, getting some rest before setting out the next day. It broke our hearts to see this and it stuck with me as we walked back to the rig.
I waited till I thought that they were awake and went out to talk with the young man to see what his story was. I had filled a large zip-lock bag with dog food for the pup and grabbed a couple treats from Boomer’s container. As I approached the young man he was walking around in almost the same spot we had seen them sleeping. The pup had a rawhide toy that he was playing with. I asked the young man where he was headed and he said he was going to Wyoming to visit some family. He had spent the winter in NY and was hitchhiking up to the Cheyenne area. He was hoping to get a job driving truck. He was very polite and humored this mom’s questions of “do you have money”, “do you have food” and “what do you need”. He said that he needed socks so off I went into the store, hoping that Flying J stocked something so basic but knowing that they aren’t exactly a Wal-Mart either. They did have a 6-pack of socks so I bought them and took them back out to him. I gave him the dog food and he started re-arranging his backpack to find room for it. He said he wanted to get over to the TA truck center because that was on the route he needed to go north on. He had pulled a muscle walking so many miles the day before and was trying to rest up a little before heading out again. The heat of standing out on the highway for several hours had taken a toll on his dog so it was good that they stopped for the night. Once I came back to the rig and told Linda about our discussion, she went out and asked him how far it was to the TA plaza and he told her 7 miles. She loaded him and his dog into the Xterra and headed out to take them up the road so they could get a start from the TA. She said he was so appreciative of the ride and she gave him $20 to give him a couple meals for the next leg of his trip.
It was a small interaction but one that we felt really drawn to, that sad Sunday morning. My heart was so heavy for Joel and my kids but I know that as generous as Joel was, for all of his life, he would be proud. Joel spearheaded the campaign in the Sayre/Waverly area in 2011 when so many homeowners were devastated by the flood. Times when I would chat with him or exchange e-mails, he was helping someone rebuild this or that and the rebuilding continues until today. He served on the Salvation Army board and loved everything that he did with them. The Valley Business Alliance was such a huge part of his life and he so loved to help others in any way he could. He never asked for anything for himself and got by with so little. His heart was so full of generosity and compassion for others. He played Santa Claus for many years at the Sayre Theatre and this year he sent me an e-mail of an interaction with a child that touched him so deeply. When he asked this particular little boy what he wanted for Christmas the little boy teared up and said, “Why can’t everyone just get along ? Why can’t everybody just love one another?” I’m not sure that Santa had an answer for that little boy but I can almost guarantee you that Joel gave that little boy a big hug before he climbed down off his lap. He was very moved that something like that would come from the lips of a small child. Things like that touched him. Joel was very sentimental and not a Mother’s Day would go by that he didn’t send me an e-mail and thank me for Becky and Jay. He loved all of his kids and grand-kids so much and felt that they were such a blessing to him. I think that blessing flowed the other way too….they were blessed, for too short a time, but blessed nevertheless with a father who was such a great role model of love, selflessness, compassion and friendship. He will be greatly missed but his legacy lives on in them and in all of us, should we decide to help our fellow man. What do you want your legacy to be ?

It’s A New Day….

We awoke to a beautiful day, here at Cherry Creek State Park, in Aurora, CO. Linda and I took our morning coffee outside to enjoy in the cool temps. Our site is very nice, siting on top of Good Rush Loop, where we can overlook many of the sites that sit lower in the loop. Boomer has been enjoying being outside, hanging out on the patio or laying in the gravel. He’s such a mellow dog and that is probably due to him being 14, although you wouldn’t know he’s that old except for the gray on his face. There are two big, black and white birds that must have a nest in the tree next to our site and they must view Boomer as a threat to their babies. He’s trying to be a good neighbor but one will sneak up behind him and peck his tail, when he’s laying outside the rig. Once the bird has done that, Boomer will take a little hop toward the bird and it will retreat. This bird will do that even when we are sitting out there within 6’ of this bird. It’s kind of funny to watch but I think Boomer is growing weary of it. Maybe the bird thinks that Boomer is his big brother (they do have the same coloring) and just wants to play.
We were able to check in here yesterday, around mid-day, after spending Saturday night at the Flying J, just down the road from here. We were actually parked next to another couple, who is a few sites from us here, who were also waiting to come to Cherry Creek. Our reservations have us leaving on Friday morning but since my surgery is Friday, the campground manager has agreed to let us move to an overflow spot on Friday. We’ll have to check out on Saturday and I’m hoping that I feel well enough to travel so that we can start the drive back home. If we have to hang around for a few more days, for post-op, we’ll have to find another campground in the area. We’ll see what Friday’s surgery entails and go from there.
I’m trying to stay positive and upbeat for my surgery but we had some terrible news yesterday and it’s been really hard to deal with. My daughter and son have been taking turns, going to be with their dad, who had triple bypass surgery back in PA. Becky spent the initial week with Joel during his surgery and hospital stay. Jay spent this past week with his dad and early Sunday morning Joel had to go back to the hospital and something went horribly wrong and they couldn’t stop or reverse it. Jay called me around 3 a.m. to say that his dad had passed away. It was a horrible shock when he seemed to be well on his way to recovery. Jay and his older sister Liz (from Joel’s previous marriage) got to be with Joel when he passed. He was so loved by all five of his kids as they have traveled to spend time with him during this whole ordeal. Joel adored all of his kids and his grandkids and has left a really big void in their lives with his passing.
Joel was very involved in the Sayre/Waverly business community, serving on many boards and felt very strongly about giving back and helping others. Joel spent his life in TV and radio and retirement did not slow him down at all with all of the charitable work that he did. Here is one of this morning’s front page articles that appeared in a paper back home, that goes into more detail about his work with the community. Joel played Santa for many years in Sayre, with his natural white beard and jovial manner. Joel and I  have been good friends over the years, since our divorce, and Joel has always been a part of our family’s holiday functions. I feel very conflicted about being so far from home during this tough time in my kids’ life but they have told me that I need to focus on my health as well and that I need to take care of myself. I know they will get through this but it’s tough for all of us nevertheless. Please keep them in your prayers as they go through this really tough time. I know he is still very much with us in spirit and always will be. Rest in peace Joel….you were loved and will be missed.